Confused about the Proposed Gluten Free Labeling Laws?

Breaking news: Here is an excellent update / explaination on Gluten Free Labeling Laws: http://www.1in133.org/proposal/resources/assessment/

“Dr. Stefano Guandalini, Medical Director, of the Celiac Disease Center at the University of Chicago, shares his analysis of the Safety Assessment . . .”

Dr. Guandalini is a hero of mine. He brought an understanding of celiac disease and gluten-intolerance to the U.S.A. — many of the positive changes in the celiac community can be traced back to the wonderful work Dr. Guandalini has done.

At the time, the medical community felt that celiac just wasn’t a problem for North Americans. Dr. Stefano knew better. He realized that it wasn’t that people here didn’t get celiac disease, it was that they weren’t being diagnosed. He has also consistently been on the cutting edge of understanding the importance of taking non-celiac gluten-intolerance very seriously.

From The University of Chicago:

Dr. Guandalini, originally from Naples, Italy, was shocked to learn how few Americans were diagnosed with Celiac Disease when he came to the United States in the early 1990’s. Dr. Guandalini quickly discovered the reason for the lack of diagnoses in the United States.

It wasn’t that it was less common (in fact, current research shows the prevalence of celiac disease is approximately 1 in 100 Americans); rather it was that U.S. medical doctors had for years been taught that celiac disease was extremely rare and were therefore not screening patients for the disease.

More . . .

Dr. Guandalini is founder and medical director of the University of Chicago Celiac Disease Center. Dr. Guandalini received his medical degree from the University of Messina, in Italy, in 1971, where he graduated with high honors. After his pediatric residency at University of Messina, he completed his fellowship in pediatric gastroenterology at the prestigious University of Naples, where he became an Assistant Professor. In 1977-79, he spent two years as a research associate in the Department of Medicine at the University of Chicago, where he did active bench research on the pathophysiology of diarrheal disease. Shortly after he returned to Italy, he received a promotion to associate professor and then became a full professor at the University of Naples in 1988. From 1990 to 1995, Dr. Guandalini served as the Chairman of Pediatrics at the University of Catanzaro.

Dr. Guandalini’s scientific and professional career has focused on diarrheal diseases of children, with a major emphasis on celiac disease. In 1990 he coordinated a national effort in Italy resulting in the publication of the largest series of patients ever published, which resulted in the revision of the 20-year-old ESPGHAN guidelines for diagnosing celiac disease. These new guidelines are currently used worldwide both for pediatric and adult celiac patients.

I hope you enjoy reading what Dr. Guandalini has to say about gluten-free labeling laws. Comments welcome.

Love to all,
Lee
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2 Responses to Confused about the Proposed Gluten Free Labeling Laws?

  1. Alana says:

    Thank you for sharing this article. This worries me, because he says that the “majority” of celiacs won’t react to amounts under 10 mg/day. For the minority who do, this new labeling seems to make it impossible for them to find truly gluten-free food. And how do we know what our own tolerance levels are?

    More troublesome still, I know I eat more than 1.1 lbs of food each day. If I am eating 2 lbs of products labeled “gluten-free”, I may be getting enough to do significant harm.

    • Thank you for posting.

      This would be an excellent question for the Gluten Intolerance Group (GIG) of North America. You can find them here: http://www.gluten.net/

      It would be a good idea to run this one by your doctor as well. He/she may say that the best way to tell if a person is ingesting too much gluten is to have regular tests to monitor the body’s progress on how will it is responding to a GF diet.

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